Monthly Archives: October 2014

Celebrate the Small Things – October 31, 2014

Hello blogger friends. It’s Friday, October 31, 2014, HALLOWEEN! and time for the Celebrate the Small Things meme brought to us by Viklit at Scribblings of an Aspiring AuthorThis is one of the easiest blog-hops to participate in. Post anything you’re celebrating, no matter how small or big, on your blog. Sign up by clicking on the image, Celebrate the Small Thingsand hop around and celebrate with others. Make sure your blog post has a link to the sign-up as well, so other bloggers will be able to sign-up and hop around tooAfter posting the things you have to celebrate, please don’t forget to visit and thank Viklit’s awesome and amazing co-hosts for the wonderful job they do:

 

Diana Wilder
LG Keltner @ Writing Off the Edge
Katie @ TheCyborg Mom
CaffeMaggieato @ mscoffeehouse

This week I have a few things I’d like to celebrate:

 

  1. I’ve upped my advocacy to a new level by making it to Ace status on my You’re the Cure Advocate site.
  2. I’m celebrating the fact that a close friend made it home safely from El Salvador after being gone for two weeks and dealing with earth quakes over there.
  3. I’m celebrating the fact that I’ve been posting and pinning more about stroke prevention and health particularly around World Stroke Day.
  4. I’m celebrating the fact that I’m about as prepared for NaNoWriMo as I can be, considering it starts at midnight tonight and that I’ve started my NaNoWriMo fundraising page for the organization that has helped me so much in my recovery
  5. I’m celebrating the fact that I’M STILL HERE.

 

What have you celebrated this week?

 

 

 

World Stroke Day – October 29, 2014

Good morning bloggers. Today is Wednesday, October 29 and it is also World Stroke Day. It’s a day to bring attention and awareness to the devastating effects that strokes have on the people they strike. Many are misinformed about who is susceptible to having a stroke. Young people are especially notorious for saying, “Oh, it can’t happen to me; I’m too young.” I’ve got news for you, it can happen to anyone at any age, even newborns and toddlers.

As an Advocate and Activist for You’re the Cure, I do my best to bring attention to the needs of stroke survivors, their caregivers, and families, particularly in Pennsylvania, where I currently reside. Although I am currently uncleared to drive, that will NOT always be the case. World-Stroke For now, I do most of my advocacy work from home. I contact my state lawmakers about proposals of importance like increased funding for therapies for those of us with Medicare. I know I’ve published the F.A.S.T. infographic in previous posts, but I’m going to include it here again. It’s good as a guideline, particularly if the patient is suffering from an ischemic stroke at the time.

I had a sub-arachnoid hemorrhage secondary to a ruptured aneurysm, also known as a hemorrhagic stroke. During my craniotomy, I suffered an ischemic stroke as well, which is a common side effect of that surgery. In a later post, I will explain in further detail the differences between ischemic and hemorrhagic strokes.

For now, please share this post, tweet it,  and pin this infographic to your Pinterest if you have one, so we can reach as many people as possible. Thank you!

 

 

 

 

 

Celebrate the Small Things – October 24, 2014

Hello blogger friends. It’s Friday,  and time for the Celebrate the Small Things meme brought to us by Viklit at Scribblings of an Aspiring AuthorPost anything in life that you’re celebrating, no matter how small or big, on your blog. Sign up by clicking on the image, Celebrate the Small Thingsand hop around and celebrate with others.  Make sure your blog post has a link to the sign-up as well, so other bloggers will be able to sign-up and hop around too. After posting the things you have to celebrate, please don’t forget to visit and thank Viklit’s awesome and amazing co-hosts for the wonderful job they do:

Diana Wilder
LG Keltner @ Writing Off the Edge
Katie @ TheCyborg Mom
CaffeMaggieato @ mscoffeehouse

I had a good week. A friend came to visit and stayed with me for a few days, helping me run some errands and organize my cottage. We got some food shopping done for me, hooked the cable up to my big screen in the living room :), enjoyed Italian dinner one night, Perkins dinner another night and Popeye’s the last. Since I live alone and don’t drive, we enjoyed our dinners eat in, no take out. Awesome sauce.

My first appointment with my new psychiatrist was a successful one, and as always, every visit with my neuro-psychologist Dr. D was amazing. I spoke to an agency about getting Medicare supplemental insurance to help with my Part B.

I was able to get some work done with my NaNo prep, but not much. It’s ok though; I needed this week! Best of all, I’m here!!

What have you celebrated this week?

 

 

 

Survive and Thrive Blogfest!!

It’s time for a special kind of blog-hop. It’s called the Survive and Thrive Blogfest and it’s being thrown by the four wonderful people listed below. healthblog Of course how did I know that the Ninja Captain would have his hands in this too?

Stephen Tremp, Michael Di Gesu, Diane Wolfe, and Ninja Captain Alex J. Cavanaugh.

The blogfest is meant to bring awareness of disease prevention and early detection regarding medical conditions that may be averted or treated if caught in the early stages. Our desire is to motivate people to go in for early screening, and if a condition is caught early and treated, then our world just became a little better place to live.

Considering I’m a brain hemorrhage and stroke survivor, it would make sense for me to write my post on stroke prevention, but I’m going to be a bit more generic. My specific case is extremely complicated, but for the purpose of this blogfest, I’m going to K.I.S.S. – Keep It Simple Silly.

At the end of this post, I will include an infographic courtesy of Jeffersonregional.com on how to spot the possible signs of a person experiencing a stroke.

What I’m listing below is not only for stroke prevention. It’s for healthy living that will help reduce your risk for hypertension (high blood pressure), increased cholesterol levels, heart disease, and a variety of other medical conditions.

  • Eat a healthy diet
    • Veggies, fruit, fish, whole grains, low sodium, limit or eliminate processed foods entirely.
    • If you eat food that’s low in saturated fat, trans fat, and high in fiber, you can greatly reduce your risk of having high cholesterol.
    • If you eat food that is low in sodium, you will also reduce your risk of hypertension.
  • Maintain a healthy weight
    • Being overweight or obese also puts you at risk for diabetes, heart disease and numerous other medical conditions. Have your doctor check your BMI (body mass index) the next time you go in.
  • Get enough exercise
    • Exercise not only helps maintain a healthy body weight, but it also helps reduce cholesterol and high blood pressure. Your body releases endorphins when you exercise, so it also helps when you’re depressed because it gives you a positive feeling.
  • Don’t Smoke
    • This one is obviously a given. Smoking not only increases your chances for stroke, but also for lung disease. I stopped for nine months after my bleed; stress caused me to start again. I’m not proud, but am on a mission to stop completely by year end, now that I am no longer in a stress provoking environment.
  • Limit alcohol use
    • This one is also a given. Too much alcohol consumption can not only raise your blood pressure, but can cause alcoholism, liver problems, and countless other medical problems.

There you have it. My little addition to the Survive and Thrive Blogfest; along with my confession. I know my Fellowship family is going to be butt kicking me all over the blogosphere for that one!!

Here is the infographic I promised of how to spot the signs of a possible stroke. If you’re present, Heaven forbid, when this happens to someone you care about, waste no time and call 911 ASAP.

But truth be told, I want you stroke free, heart healthy, with normal cholesterol levels and a blood pressure within your normal limits. It’s one of the reasons why I started this second blog. If I can be part of other blogfests that will bring awareness, then bring them on, I’m in.

Thanks for stopping by.

 

 

This Blog’s First Award, a Liebster!

Hello there my beloved blogger friends! It’s a wonderful day for me I have to say. I’ve found myself some wonderful new blogger buddies recently and have the honor of receiving this blog’s first Award, the Liebster.

https://lifepostbrainhemorrhage.wordpress.com/about

First Liebster

I have to thank fellow blogger feminineandfeline for the nomination. For an up and coming new blog, recognition like the Liebster has meaning. It helps spread the word about the existence of new blogs and gives us the opportunity to venture out and make new friends. I learned that from my first blog. Thank you so very much; I’m deeply grateful.

 

 

Alright, Here are the facts:

Here are the Official Rules for accepting the Liebster Award: (There are a couple of different versions online)

  1.  Answer the questions given and then come up with 10 new ones to ask your nominations.
  2. Nominate 8 other blogs, let them know you have nominated them and put a link to their blog in your post.
  3. No Tag backs.
  4. Nominations must have under 200 followers.
  5. You must tell all the blogs that you have nominated them

My ten questions to answer…

One. Kate Spade or Michael Kors?     Michael Kors
Two. What are you favorite sports teams?     New York Yankees and Baltimore Ravens
Three. If you could be a superhero which one would you be & what special power would you possess?   Healing
Four. What’s your favorite thing about yourself?     My ability to survive no matter what circumstances I’ve been thrown in.
Five. What’s one of your greatest accomplishments to date?  My daughter, having a flash fiction piece place, and having a recent post submission accepted into an Anthology. I know it’s 3, but I’m happy. 🙂
Six. What is one of your fondest memories? Graduating pre-school way, way, way back in the day. Lol.
Seven. What’s your favorite color? Purple, pink, closely followed by green. I know, another 3.
Eight. Have you ever been bullied?  Yes.
Nine. What is something on your bucket list a.k.a something you would like to do before you die?   Visit Hungary. Preferably with my brother and some other family members.
Ten. Do you have any tattoos//if so what are they?   I have just one by my right shoulder. A small rose with a ribbon running through it and my daughter’s name. It’s old and probably faded.

My eight nominees for the Liebster are:

  • Any of my followers who have under 200 followers. Now that was simple, wasn’t it? Since I haven’t been around that long, I think it’s easy to say that this blog probably don’t even have eight followers with less than 200!!

Ten for you guys to answer!!

  1. What is your blog about in one sentence?
  2. Who is your favorite author and why?
  3. Do you consider yourself a healthy eater? Why or why not?
  4. What do you do for stress relief?
  5. What is your favorite hobby?
  6. Do you own any pets? If so, what kind?
  7. Starbucks or Dunkin’ Donuts?
  8. What kind of music do you listen to?
  9. Do you consider yourself an introvert or an extrovert?
  10. What is your favorite color(s)?

Thanks once again for the nomination! I’ll proudly display it on my blog!

 

 

Celebrate the Small Things – October 17, 2014

Hello blogger friends. It’s Friday, October 17, 2014 and time for the Celebrate the Small Things meme brought to us by Viklit at Scribblings of an Aspiring AuthorThis is one of the easiest blog-hops around. Post anything in life that you’re celebrating, no matter how small or BIG, on your blog. Sign up by clicking on the image, Celebrate the Small Thingsand hop around and celebrate with others. Make sure your blog post has a link to the sign-up as well, so other bloggers will be able to sign-up and hop around tooAfter posting the things you have to celebrate, please don’t forget to visit and thank Viklit’s awesome and amazing co-hosts for the wonderful job they do:

 

Diana Wilder
LG Keltner @ Writing Off the Edge
Katie @ TheCyborg Mom
CaffeMaggieato @ mscoffeehouse

Thankfully this week wasn’t too bad:

  1. Little by little I’ve unpacked and put away several bags and boxes of clothes and things I need…
  2. I had my follow-up appointment with my neurologist, Dr. H and it went well. She reduced my Topamax by 25mg. so I’m back down to 50mg. at night and 50mg. in the morning. Eh. I’ll take what I can get. At least I’ll save some $$$ on the 25mg. tabs. Won’t be able to do anything about lowering my Keppra until I’ve passed my seizure-free time. I’m not even going to mention it, so as not to jinx myself again. :-/
  3. I spoke to the Realtor last week about the lady who was supposed to run errands for me and things, but I haven’t heard back from him; I did conduct a phone interview with the girlfriend of the cab driver who took me to my neuro appointment. She works and I may hire her just to take me to doctor appointments and errands. Your feedback is welcome. I’m also going to check into local services for now. NJ is home, but I can’t see myself leaving before the holidays after just having had my stuff brought over to my rental. I should’ve just had it brought over when I rented it and lived here. Another life lesson learned the hard way.
  4. I’m slowly working on an outline for November’s NaNo. Whatever progress I make or don’t will be updated on my writing blog, lilicasplace during next month. I’ll see how it goes. I’ve always been a pantster; let’s see how the plotting goes.
  5. I’ve heard from one or two people I haven’t heard from in a while. Sweet. I’m happy about that. Like my special fellowship always says, “While alive, brother, while alive.”
  6. I’m still here. Amen.

What have you celebrated this week?

 

 

 

Redefining Disability Challenge – Post 2

Hey everyone. It’s time for me to answer a couple more questions for the redfng-disblty2Redefining Disability Challenge started by Rose B. Fischer. If you click on the image to the left, you can see exactly what it’s all about and feel free to join. Answer as many of the 52 questions as you like, or the ones that pertain to you. There is no time limit. Answer them in one post, one a day, a week, or whatever fits your needs.

As I mentioned in my first post for this challenge, I’m going to try spreading the questions out through the remainder of the year. If all goes well, I should have the questions all answered before Christmas. I’m answering questions two and three for today’s post.

2.  If you have a medical diagnosis, do you see yourself as having a disability? Why or why not? If you don’t have one, how do you view the concept of disability or the people in your life who have them?    Having survived both hemorrhagic and ischemic strokes, I suffer disabilities secondary to those incidents. I still have left-sided weakness and neuropathy. My gait is uneven, my reaction times are extremely slow, and it is difficult for me to turn my body from the left position. My left shoulder is becoming partially frozen again, even though I’m doing at home exercises in an attempt to keep my arm moving freely. Per my rehabilitation doctor, I will most likely have to continue professional physical therapy again for whatever amount of time Medicare will approve me for (If anyone knows of a good secondary health provider, please comment or email me.)  I also suffer chronic pain not only from the neuropathy, but pain from the fractures in my back and from time to time when my knee acts up it’s just one big cluster.

I’ve also been diagnosed with major depression and anxiety, especially after I found out that my employer was no longer going to approve any leave for me. At most, I may have needed another year and I believe I’d have been good to go, at least part-time, but they took it away from me. God does not like ugly. But I digress.

Those are ‘the biggies’. Other than that, I have a minor cholesterol and hypothyroidism issue that I’m working on with my primary care doctor. I will be scheduling my neurologist appointment next week so we can discuss my medications. Now that I’m no longer in such a stressful environment, I’m hoping we can work towards weaning me off some of the medications. (Keeping my fingers crossed.)

3. What have your experiences been with medical treatment and/or therapy been like? Do you have positive, negative, or mixed feelings about your experiences?    Treatments and therapies have DEFINITELY been a mixed bag as far as my experiences go. When I followed up for the first time with my neurosurgeon, I hobbled into his arms crying my thanks. He saved my life. End of story. He stroked my hair and started laughing, telling me I was his miracle and I was going to do well.

The neurologist? HATED HIM! He was arrogant and didn’t give a damn about anything I had to say, even though I never went into his office alone and thought I had an ‘advocate’ with me. Apparently not.

When I initially complained about how painful my left arm was and there was no movement whatsoever, he just looked at me and said, ‘You’re lucky to be alive. It’s a residual of the stroke. You’ll get used to it.” I was so angry and hurt and of course I couldn’t go off because if you’ve read any of my earlier postings or my About Me, I stutter and cry uncontrollably when distressed. This wasn’t even a year after the bleed, so you can imagine how bad I was. I couldn’t even find my words.

I couldn’t accept that answer, nor could anyone else close to me, especially my daughter. That’s when I found my Rehabilitation doctor who took the time to run tests and found out that I had a frozen shoulder! Why look at that… He immediately started me on physical therapy and ordered a specialized machine to be brought to my home for me to work my shoulder on.  My physical therapist, my rehabilitation doctor and my NEW neurologist are amazing. They take the time to listen and they do the right thing by me. Oh, and by the way – after only six weeks of physical therapy, no more frozen shoulder.

While going through treatment for the TTP, (while it was no picnic), my hematologist was the closest thing to an angel that I’ve ever met. Of all the doctors I’ve had, and still have, she and my neuro-psychologist Dr. D are my very favorite. They are both class acts and I think a lot of doctors could learn something about patient bedside manner from these two.

Until next post everyone…