Monthly Archives: August 2014

Coming Clean About My Stroke-Part6

I’m so behind in re-blogging this. So sorry. Part 6

lilicasplace

So, I’m finally back after taking a brief two-week hiatus. I apologize for that. I’ve done most of my catching-up, but not all. I will catch up by the end of the week. It is now time for me to continue to the last few parts of my Series posts. There should be no more than three or four after this that will bring you to up to speed about how I’m doing physically, medically, emotionally and psychologically in my life today.

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The days after Christmas flew by. I was doing extremely well and, as I mentioned in Part 5, I graduated from the ‘Buzz-master’, as it affectionately came to be called. I was walking around more confidently with my walker, maneuvering the corridors like a pro. I did well on shower days and was able to wash myself with little to no assistance (of course, sitting on the…

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Celebrate the Small Things – August 15, 2014

Hey bloggers!  It’s Friday August 15, 2014 and it’s time for the weekly meme ‘Celebrate the Small Things’ brought to us by Viklit at Scribblings of an Aspiring Author.

Celebrate the Small Things

Join the Celebration!!!

This is one of the easiest blog-hops around. Post anything in life that you’re celebrating, no matter how small or big, on your blog.

Sign up by clicking on the image to your left, and hop around and celebrate with others. Make sure your blog post has a link to the sign-up as well, so other bloggers will be able to sign-up and hop around too!

After posting the things you have to celebrate, please don’t forget to visit and thank Viklit’s awesome and amazing co-hosts for the wonderful job they do:

Diana Wilder
LG Keltner @ Writing Off the Edge
Katie @ TheCyborg Mom
CaffeMaggieato @ mscoffeehouse

I’m happy to say that I had a few things to celebrate this week.

  • My birthday was Wednesday the 13th and I turned 49 years young. I had tons of texts, phone calls and some Facebook messages with wonderful birthday wishes. I received a microwave, a nice bouquet of flowers, a sterling silver bracelet, a tres leches cake, and a bottle of coconut rum (yes, I shared because of my meds!)  🙂
  • I received my Avon order that I placed a couple of weeks ago, so I’m thrilled about that. I love my Avon-what can I say…
  • Even though the weather was poor, my pain was tolerable on Wednesday, so I’m grateful for that.
  • I completed another article for a company, finished another poem, and edited some more of my WIP.
  • I’m here, and I made it to another birthday!

I’d say overall I had a pretty darn good week.  🙂

What have you celebrated this week?

Celebrate the Small Things – August 8, 2014

Hey bloggers!  It’s Friday August 8, 2014 and it’s time for the weekly meme ‘Celebrate the Small Things’ brought to us by Viklit at Scribblings of an Aspiring Author.

Celebrate the Small Things

Join the Celebration!!!

This is one of the easiest blog-hops around. Post anything in life that you’re celebrating, no matter how small or big, on your blog.

Sign up by clicking on the image to your left, and hop around and celebrate with others. Make sure your blog post has a link to the sign-up as well, so other bloggers will be able to sign-up and hop around too!

After posting the things you have to celebrate, please don’t forget to visit and thank Viklit’s awesome and amazing co-hosts for the wonderful job they do:

Diana Wilder
LG Keltner @ Writing Off the Edge
Katie @ TheCyborg Mom
CaffeMaggieato @ mscoffeehouse

I’m happy to say that I had a few things to celebrate this week.

  • Most important on my list, I picked up my Lhasa Apso, Sophie! I missed her so much.
  • I took care of some personal issues in NJ and was able to scratch it off my list. Yay!!!
  • I’ve noticed that my depression has eased up a little bit since the Paxil increase, but I’m still working on managing my pain. I’ll take what I can get.
  • I enjoyed a long conversation with one of my good friends/former co-workers which I don’t get a chance to do much anymore.
  • My daughter and some friends are looking into apartments for me in NJ, so I can get back home soon.

Overall it was a decent week for me. Better than some of the others I’ve had. 🙂

What have you celebrated this week?

#IWSG-Insecure Writers Support Group-STUMBLING BLOCKS

Hey all. It’s Wednesday, August 6, 2014, the first Wednesday of the month. We know what that means, right?

Click on the Image to Join

Click on the Image to Join

It’s meetup time for the Insecure Writers Support Group – #IWSG. Ninja Captain Alex J. Cavanaugh founded this amazing and wonderful group.

The purpose of this group is for writers of any kind to share their doubts and fears, trials and tribulations without fear of being mocked or feeling foolish. It’s also a place where writers who have “been there” can offer wisdom and guidance.

Whenever anyone finishes a draft, edits their work, finds the perfect critique group, publishes their work, or has any other good news to share, this is the place to do it too!

Co-hosts for August’s IWSG are Sarah Foster, Joylene Nowell Butler, Lily Eva (my other blog), and Rhonda Albom!

So, I had a stumbling block regarding recovery and I’m not happy. On July 5, I had a seizure while working on the computer and my friends were watching a movie in a dark living room. Not a good combination. I should’ve known better; I wasn’t thinking.

My friends panicked and I was helpless to let them know I would be fine. For those that don’t know me – since surgery, I occasionally suffer from partial seizures. My eyes focus on something, my left arm goes to town, but I’m fully conscious and aware of what’s going on around me. I just can’t speak or respond. They called 911.

I was taken to the ER, given a CT scan, dose of Keppra, but refused to stay. My neuro appointment was three days away. I saw her that Tuesday, she told me my brain MRI & CT scan came back great. This was supposed to be the visit clearing me to drive again, to start weaning me off seizure meds. After ten months seizure free, my stupidity brought me back to square one. How do I say heartbroken?

I was nearly to the point of giving up, but after a few days of tears I decided that giving up was not going to be an option for me. So, as always, I will continue to fight, pay more attention to possible triggers, and get past these next six months, and get behind the damn wheel.

Have you ever had stumbling blocks so big you felt like giving up? How did you overcome them?

 

 

 

Important Legislation – Recreational Therapy Petition

Hey there bloggers. As part of my duties as an advocate for stroke, health, and pain related issues, I came across this petition circulating on Change.org. Anyone that’s been in a position like myself understands how important Recreational Therapy is as an integral part of inpatient stroke and brain rehabilitation.

As of now, physical, occupational, speech therapies, orthotics, and prosthetics are covered under the Social Security Act. They are all massively important. I also know how much Recreational Therapy helped me. I looked forward to it. It gave me joy knowing when it was coming up. It helped me with my memory, focus, and concentration skills. I spent my sessions playing Scrabble with my therapist, an occasional bowling game on the Wii (very poorly, I might add, but it was so much fun I almost forgot for a half hour how sick I was), and other fine motor skill activities that helped me.

Please sign and reblog this petition. They’ve reached about 2,000 signatures. They’re looking for 10,000.

  • FOR IMMEDIATE RELEASE

    Danny Pettry

    Petition Organizer

    Bi-partisan bill set to expand treatment options for patients

    Huntington, West Virginia (July 14, 2014) — A new bill, H.R. 4755 (The Access to Inpatient Rehabilitation Therapy Act of 2014), is set to go before the House Ways and Means Committee for approval. The bill, which would be an addition to Section 1886(j) of the Social Security Act, is a bi-partisan effort to expand the types of therapy patients who have suffered brain injuries and other trauma can receive.

    In an effort to get representatives to approve the bill, Recreational Therapy Advocate Danny Pettry has started a petition on Change.org: http://www.change.org/petitions/sander-martin-levin-include-rec-therapy. The site allows citizens and organizations to raise awareness for causes close to their hearts and gain public support for important votes coming before Congress. Already, the petition has amassed over 700 supporters.

    “Using Recreational Therapy will help get those people back to what they love doing with use of adaptations and modifications. This is important to the individual in the rehabilitation facility to continue in what they love doing or finding things they like to do, while working toward goal-specific outcomes,” said Sarah Rozanski, a soon-to-be graduate of a recreational therapy program.

    The petition supports a bill that, if passed, would make recreational therapy an accepted treatment option under Medicare. Currently, only physical therapy, occupational therapy, speech therapy, orthotics and prosthetics are considered acceptable treatment options. By introducing this bill, Pettry and its supporters in Congress hope to empower physicians and patients to devise the best treatment plan to reach their desired goals.

    “By including recreational therapy under the three-hour rule, Medicare beneficiaries in inpatient rehabilitation hospitals and units will regain access to important therapies deemed medically necessary by their treating physicians and therapists. This will also reduce the risk that patients will be inappropriately diverted into less intensive post-acute care settings,” wrote Phillip R. Bryant, DO Chair of the Reimbursement and Policy Review Committee (RPRC) and member of the American Academy of Physical Medicine and Rehabilitation (AAPM&R) in a letter to Congressman Glenn Thompson.

    The Access to Inpatient Rehabilitation Therapy Act of 2014 was introduced by Congressman Glenn “GT” Thompson (R-PA) and Congressman G.K. Butterfield (D-NC). It has received public support from a number of professional organizations, including the American Medical Rehabilitation Providers Association, Brain Injury Association of America, and the United Spinal Association.

    Visit this link to sign the petition: http://www.change.org/petitions/sander-martin-levin-include-rec-therapy.

    ABOUT DANNY PETTRY: Danny Pettry has worked with children and adolescents in West Virginia since 2002. He has Master’s Degrees in Mental Health Counseling and Therapeutic Recreation from Lindsey Wilson College and Indiana University, respectively. He is a member of the American Therapeutic Recreation Association as well as the West Virginia Therapeutic Recreation Association.
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Thanks everyone! Until next time… Have a great day.

 

 

Celebrate the Small Things – August 1, 2014

Hey bloggers!  It’s Saturday August 2, 2014 and I’m a couple of hours late for the weekly meme ‘Celebrate the Small Things’ brought to us by Viklit at Scribblings of an Aspiring Author. Luckily it’s only two am. 🙂

Celebrate the Small ThingsThis blog-hop is easy-post a celebration, however small or big, in your blog. It doesn’t have to be related to writing. It can be anything happening in your life.

Sign up by clicking on the image to your left, and hop around and celebrate with others.

After posting the things you have to celebrate, please don’t forget to visit and thank Viklit’s awesome and amazing co-hosts for the wonderful job they do:

Diana Wilder
LG Keltner @ Writing Off the Edge
Katie @ TheCyborg Mom
CaffeMaggieato @ mscoffeehouse

I spent most of the week at home with my Compai and his mom. Sophie spent the week with her other Mommy and will stay with her for a few more weeks until I pick her up again. I miss her already.

I’m noticing a change with the increased dose of Paxil, although I am sleepier than usual. I’m switching it to night time instead of taking it in the morning. I managed to see my neuropsychologist, pain management doctor, and my rehabilitation doctor this week. I always love my visits to Dr. D., my neuropsych. He is the only man in this world I trust right about now. I tell him anything and he listens and lets me finish my sentences. I love that about him. I always celebrate the weeks I’m able to visit with him. I’m less depressed when I do.

I told my pain doctor, Dr. P., that my pain days have increased, but I’m uncomfortable with increasing my Fentanyl for obvious reasons. He initially felt I should change my patch every 60 hours instead of 72, but I didn’t like that idea. My goal is to wean off meds, not increase. For now he prescribed Tramadol for breakthrough pain as needed. Celebrating the fact that we managed to compromise on that issue. I have another method of pain relief I’ve tried a few times, but that’s for another upcoming post.

My rehab doctor found that my left shoulder has become stiff and is concerned that it may become frozen again. I try stretching it as much as I can; I need to find some new and creative exercises to get that baby moving right again. It’s hard to notice some of the changes with the neuropathy. She seems to move fine to me, obviously I was mistaken. He also gave me a scrip for another X-ray for my right knee. Otherwise, my exam went well and he’s going to hold off on PT until I get back home to PA.

Before heading back to CT, we enjoyed lunch at Friendly’s and I indulged myself in a well deserved sundae.

What have you celebrated this week?