Author Archives: My Miracle Life

About My Miracle Life

I'm a writer, blogger, avid reader, book reviewer, sub-arachnoid hemorrhage and stroke survivor, moving forward in my recovery and trying to advocate for stroke and brain hemorrhage awareness and prevention. I'm also slowly working towards independence, driving, my first novel, a memoir and a series of short stories. I've been lucky to have a very small network of close friends to guide me; I've been even luckier to have found an online 'family' of sorts to help me through the rough times.

IWSG – AN OFF-TOPIC POST

Hey, bloggers. It is the first Wednesday of the month and we know what that means, right? Time for the Insecure Writers Support Group – #IWSG.

NinjaInsecure Writers Support Group Badge Captain Alex J. Cavanaugh , my hero and one of my mentors, founded this amazing and wonderful group.

The group’s purpose is to allow writers to share their doubts and fears, trials and tribulations without fear of being mocked or feeling foolish. It’s also a place where writers who have “been there” can offer wisdom and guidance.

Whenever anyone finishes a draft, edits their work, finds the perfect critique group, publishes their work, or has any other good news to share, this is the place to do it too.

The awesome co-hosts for the April 5 posting of the IWSG will be Christopher D. Votey, Madeline Mora-Summonte, Fundy Blue, and Chrys Fey!

Usually, for the IWSG I post things related to what’s going on medically in my life or some goals that I have. This month I’m doing something different. I don’t want to cause sadness, just awareness.

Most of my followers know that my occupation before the bleed was as an EMT in NJ. Yes, I still miss it. Like other emergency responders, EMS can be just as dangerous. I’m not sure if this story went national, but on March 16th, FDNY EMT Yadira Arroyo was run over by her own ambulance by a man who shouldn’t have been on the street.

She was a 44-year-old mother of five and a fourteen-year veteran of FDNY. I never knew her, but I wish I had. She was from the Bronx like me and loved helping people. I’d like to dedicate this post to her.

Rest easy, Yadira. Our brothers and sisters still in the field have it from here.

Check out my other blog’s IWSG post this month too at lilicasplace.

 

 

 

 

 

#CTST – EVERYDAY I’M SHUFFLING…TO GET TO HUSTLING

Hey, everyone! It’s time for another posting of Celebrate the Small Things brought to us by LEXA CAINPost anything in life that you’re celebrating, no matter how small or big, on your blog.

Sign up by clicking on the image, hop around and celebrate with others.

Make Celebrate the Small Thingssure your blog post has a link to the sign-up as well, so other bloggers will be able to sign-up and hop around too. 

This is such a simple and easy blog-hop, and it also happens to be one of my favorites.  After posting the things you have to celebrate, please don’t forget to visit and thank Lexa and her awesome and amazing co-hosts for the wonderful job they do:

 

LG Keltner @ Writing Off the Edge   and Tonja Drecker @ Kidbits

 There’s been a lot going on over the past few weeks. I started Physical Therapy last week and it’s kicking my butt! 🙂 We’re focusing on balance and gait right now and some of the exercises are harder than I remember, but I’m celebrating the fact that I have a great therapist and therapist assistant.

My neurologist has taken me completely off the Keppra as of this past Wednesday. One down, three to go!!

I treated myself to a pair of Fila running sneakers and a pair of shoes. Walking in the sneakers was awkward at first because I kept feeling like I was going to fall forward because of the little dip in the front. All my sneakers have been flat for the past five and a half years. 😀 No doubt I’ll go from shuffling to hustling in no time.

Vivi and I started a ten-day juice diet a few weeks ago and have been trying to change our eating habits. I’ve lost almost ten pounds in the past three weeks.

 As always,  I’m STILL ON THE RIGHT SIDE OF THE GRASS!! Woot, woot!

What have you celebrated this week?

 

 

 

#CTST – KEEPIN’ IT MOVIN’

Hey, everyone! It’s time for another posting of Celebrate the Small Things brought to us by LEXA CAINPost anything in life that you’re celebrating, no matter how small or big, on your blog.

Sign up by clicking on the image, hop around and celebrate with others.

Make Celebrate the Small Thingssure your blog post has a link to the sign-up as well, so other bloggers will be able to sign-up and hop around too. 

This is such a simple and easy blog hop, and it also happens to be one of my favorites.  After posting the things you have to celebrate, please don’t forget to visit and thank Lexa and her awesome and amazing co-hosts for the wonderful job they do:

 

LG Keltner @ Writing Off the Edge   and Tonja Drecker @ Kidbits

 I just checked my last CTST post from late February and what a difference a few weeks make. The weather went from Spring-like to Winter in the span of a week. We got pounded with two feet of snow and the weather was down to about 10 degrees.

My knee has been screaming in pain for the past couple of weeks and my back pain and left-sided neuropathic pain haven’t fared much better. The muscle relaxers haven’t done squat. I missed posting my weekly quote since the end of February, so I’m annoyed at myself for that.

However, I do have things to celebrate this week:

I went with Vivi and the fams to see Logan last weekend. Excellent movie, although it was sad for me since I’m a newly converted Marvelite. 🙂

My initial Physical Therapy eval for 2017 went well last week. I have my first official session next week.

Today marks the end of my juice cleanse slash detox, so I can finally have some real food! Nums.

Vivi’s fam is going to see Beauty and the Beast on Sunday. Her daughter Emi badly wants to see it. Fingers crossed that I’ll be feeling well enough to join them. I’ve always loved that story.  🙂

Even though I struggle with a lot of bad days, I’m blessedly STILL ON THE RIGHT SIDE OF THE GRASS!! That’s why I continue keepin’ it movin’! Boo Yaa and Amen!!

What have you celebrated this week?

 

 

 

 

#CTST – BEAUTIFUL DAY

Hey, everyone! It’s time for another posting of Celebrate the Small Things brought to us by LEXA CAINPost anything in life that you’re celebrating, no matter how small or big, on your blog.

Sign up by clicking on the image, hop around and celebrate with others.

Make Celebrate the Small Thingssure your blog post has a link to the sign-up as well, so other bloggers will be able to sign-up and hop around too. 

This is such a simple and easy blog-hop, and it also happens to be one of my favorites.  After posting the things you have to celebrate, please don’t forget to visit and thank Lexa and her awesome and amazing co-hosts for the wonderful job they do:

 

LG Keltner @ Writing Off the Edge   and Tonja Drecker @ Kidbits

Even though I found myself sleeping a lot for the first few days after the increase in my Depakote, I managed (as I usually do) to find a few things to celebrate this week.

  1. The weather the past two days have been glorious. The snow is mostly melted and it feels like Spring. When the weather is this nice, my pain levels are reduced. I’m thrilled about that.
  2. Vivi’s family and I went to a Puerto Rican spot on Saturday to celebrate her hubby’s birthday. The food was amazing. 
  3. I spoke to a friend that I haven’t seen in years and when I head to NJ next, we’re planning to meet up. Super stoked.

Best of all, I’m STILL ON THE RIGHT SIDE OF THE GRASS!! Can I get a woohoo!! 🙂

What have you celebrated this week?

 

 

 

WEEKLY QUOTE — FEBRUARY 22, 2017

Good morning, all. It’s Wednesday and time for another weekly quote. With the new diagnosis of Syringomyelia from my neurologist, I’ve been focusing extra hard on staying strong and positive, because I’m hard-headed like that. I’ve gotten through worse and I’ll get through this.

Enjoy.

fortitude-louisnizer116464

 

 

 

 

 

 

For whoever else is struggling, this is for you, too! Xoxoxo

 

 

ANOTHER BLOW — SYRINGOMYELIA

Good morning, all. I kept the promise to myself on Friday that my post for Celebrate the Small Things would be all positive. I did that. Now, it’s time for me to post the not so great news. It would be an understatement if I said I wasn’t freaking out just a little bit but I’m doing my best.

When I saw my neurologist Dr. G on Friday, he went over my MRIs with me. The brain MRI was as expected. No new aneurysms or anything like that. Yay, for that. I wasn’t so lucky with the cervical spine MRI.

mcdc7_syringoyelia_cyst

Photo from the Mayo Foundation

It seems that I’m one of the few that suffers from syringomyelia. It’s a disorder where cysts (syrinx) forms within the spinal cord. There are two types:

  1. In most cases, it’s related to an abnormality in the brain called Chiari I malformation. This causes the lower part of the cerebellum to protrude from its normal position in the back of the head into the cervical or neck portion of the spinal canal.
  2. The second form occurs as a complication of trauma (like my car accident in 2011), meningitis, hemorrhage, tumor, or arachnoiditis. In these cases, the cysts (syrinx) develops in a segment of the spinal cord damaged by one of these conditions.

According to the National Institute of Neurological Disorders and Stroke (NINDS), approximately 40,000 people in the US are affected. Couldn’t I have just won the lottery instead? Just sayin’…

Many of the symptoms are similar to the ones I currently have from the bleed, but it could explain why I’ve had a couple of falls lately. Dr. G wants another MRI done in six months to see if it’s grown or expanded. The usual treatment is surgery if the cysts increase or expand, but I’m trying to remain optimistic that I won’t have to go that far. I’ll be monitored by Dr. G and have a follow-up cervical spine MRI in six months to check.

Oh, and I’m back to having to use my cane indefinitely. Blah. Thank goodness he’s got me going to physical therapy soon.

If you’d like more information on this disorder, you can go to the NINDS site.

Like I said, I’m going to try remaining optimistic that the syrinx won’t grow or expand and routine follow-ups will be all that’s required. I love you guys and would appreciate any positive thoughts and prayers you can send my way.

Have a great week. Xoxoxo

 

#CTST – KEEPING IT POSITIVE

Welcome to another posting of Celebrate the Small Things brought to us by LEXA CAINPost anything in life that you’re celebrating, no matter how small or big, on your blog.

Sign up by clicking on the image, hop around and celebrate with others.

Make Celebrate the Small Thingssure your blog post has a link to the sign-up as well, so other bloggers will be able to sign-up and hop around too. 

This is such a simple and easy blog-hop, and it also happens to be one of my favorites.  After posting the things you have to celebrate, please don’t forget to visit and thank Lexa and her awesome and amazing co-hosts for the wonderful job they do:

 

LG Keltner @ Writing Off the Edge   and Tonja Drecker @ Kidbits

There are some things I need to discuss regarding the MRIs I had taken a few weeks ago, but that’s for a post next week. Today, I’m keeping it all positive.

  • I saw my neurologist today and he’s weaning me off the Keppra and next week starting to increase the Depakote. He’s working one med at a time in case there’s a problem, he’ll know which med is responsible. I’m just happy to get this ball rolling already.
  • Last week my other blog, lilicasplace celebrated four years of blogging.
  • Vivi and I also had manicures done last week.
  • After my neuro visit, Vivi treated me to breakfast before heading off to work.

And of course, I’m STILL ON THE RIGHT SIDE OF THE GRASS!!

What have you celebrated this week?