Monthly Archives: December 2014

Wishing Every One a Happy Holiday!

Just wanted to jump on quickly and wish everyone a very Happy Holiday, whether you celebrate Christmas, Hanukkah (Chanukah), Kwanzaa, Winter Solstice (Yule), Eid al-Adha (The Festival of Sacrifice), or Festivus like good old Frank Costanza from Seinfeld! 🙂

Photo courtesy of Morguefile.com

Happy Holidays!

My Christmas was quiet and peaceful and I’m wishing all my followers and friends peace, prosperity, good health, and happiness for New Year 2015!

 

Celebrate the Small Things – Dec. 12, 2014

Hello blogger friends. It’s Friday,  December 12, 2014 and time for the Celebrate the Small Things meme brought to us by Viklit at Scribblings of an Aspiring AuthorThis is one of the easiest blog-hops around. Post anything in life that you’re celebrating, no matter how small or big, on your blog.

Sign up by clicking on the image, Celebrate the Small Thingsand hop around and celebrate with others. Make sure your blog post has a link to the sign-up as well, so other bloggers will be able to sign-up and hop around tooAfter posting the things you have to celebrate, please don’t forget to visit and thank Viklit’s awesome and amazing co-hosts for the wonderful job they do:

 

Diana Wilder
LG Keltner @ Writing Off the Edge
Katie @ TheCyborg Mom
CaffeMaggieato @ mscoffeehouse

This week I’m celebrating a few things:

♦  My amazing neighbor and friend Tamera, who has been a Godsend to me. She helps me with errands, appointments and chores that I have difficulty doing by myself, like heavy laundry.

♦  My pain levels this week have been a little bit better, averaging between 4-6 since I took myself off my pain patch. Last week I was close to an 8 at my worst. I’m compensating by increasing the amount of Baclofen I take daily to two and over the counter Tylenol.

♦  My two doctor appointments this week went really well and some of my meds were adjusted, and we’re working to manage my pain right now without the Fentanyl. My one doctor suggested that I consider going down to the lowest dose possible for now until we find something else that works. I told her I’d think about it.

♦  Best of all, I’m still here!!  ..

 

What have you celebrated this week?

 

 

 

Redefining Disability Challenge – Post 3

Hello blogger friends and welcome. Here is another post for the redfng-disblty2Redefining Disability Challenge started by Rose B. Fischer. If you click on the image to the left, you can see exactly what it’s all about and feel free to join. Answer as many of the 52 questions as you like, or the ones that pertain to you. There is no time limit. Answer them in one post, one a day, a week, or whatever fits your needs.

I’m going to spread the questions out over the remainder of the year and some into 2015, since a lot of the questions pertain to me already. For today’s post I’m going to answer questions number four and five.

4.  Do you think that it’s more important to emphasize medical treatment, life skills, community integration, or a combination of these things?  I believe it is important to emphasize a combination of all of the things mentioned above, although a lot of people would disagree with me as far as the percentages. I’m sure most people would think that the majority of emphasis should be on medical treatment, but I don’t agree with that.

My experience with medical treatment, as I mentioned in earlier posts, has been a mixed bag. I’ve had more positive results using the life skills I’ve learned on my own and the limited community integration I’ve had available to me. Luckily, the availability of a positive support system has increased somewhat over the past couple of months and for that I am truly grateful. Now, I rely on a close network of online friends for the support I desperately need.

 

5.  What are some significant moments/events in your life that connect to disability? — For example, you can talk about hearing a diagnosis for the first time, meeting a role model, learning something important that helped form your understanding of disability, etc. There are too many to mention in this particular post. The first cognitive memory I have is being lifted from my bed in neuro-surgical ICU into a recliner because I was unable to move my entire left side, three weeks post brain surgery. I still hadn’t come to grips with the fact that I had a devastating hemorrhagic and ischemic stroke.

I fell into a deep depression soon afterwards that has come and gone intermittently since. Most of the friends that were there for me then have continued on with their lives. There have been one or two tried and true friends that have stuck by me through it all and still look for me and call me, but for the most part I’ve found that most of my support system has been online.  consider myself lucky in that sense.

People like to pat themselves on the back and say what good friends they are when someone is close to death. “Well, I was there at her worst.” I don’t remember most of that time. If God would have taken me then, I would have been none the wiser. These ‘friends’ don’t get that. The worst is struggling to recover. To remember. To coordinate. To match what my brain says to what my body does. To verbalize what I’m thinking but what can’t come out of my mouth. It’s frustrating for me, and it hurts. That’s the worst. Being talked down to, or being treated as though I am a child in an adult’s body, that’s the worst. I get it. I get confused easily. I need things in front of me and I need a lot of time to go over things in order for them to come together an make sense. People don’t give me that time and I get flustered. I can only do so much.

I’m just over three years post stroke now and will be making some life changing decisions soon. I will be relying on myself, my closest doctors, my strongest and most steadfast supporters, and God to help me make the right decision. My goal is the same, to be as well as I can be in the shortest time possible.

Until next post…

 

 

Insecure Writers Support Group – My Year In Review

Hello fellow bloggers. It is December 3, 2014, the first Wednesday of the month. It’s time for the Insecure Writers Support Group – #IWSG.

Click on the Image to Join

Click on the Image to Join

Ninja Captain Alex J. Cavanaugh , my hero and one of my mentors, founded this amazing and wonderful group.

The purpose of this group is for writers of any kind to share their doubts and fears, trials and tribulations without fear of being mocked or feeling foolish. It’s also a place where writers with years of knowledge and experience can offer wisdom and guidance.

Whenever anyone finishes a draft, edits their work, finds the perfect critique group, publishes their work, or has any other good news to share, this is the place to do it too!

The awesome co-hosts for the December 3 posting of the IWSG are Heather Gardner, T. Drecker from Kidbits, Eva E. Solar at Lilicasplace, that’s my other blog, and Patsy Collins!

Make sure you pay them a visit and thank them for all their hard work!

Overall, this year has been a fairly good one. It’s had its shares of ups and downs but I certainly can’t complain. I was blessed enough to be able to create this blog in addition to the other blog I run. 

My story has helped others in medical situations similar to my own deal with the range of emotions and depression that is to be expected, but not everyone understands. I’ve made numerous new friends through both my blogs that I will be forever grateful for.

It’s been in this year that I’ve been able to figure out to a good degree who my real friends are and who the people I need to run for cover from are. I have been blessed to find help and assistance from places least expected. God most surely works in mysterious ways to bring me what I need. I will never doubt that again. It’s been a long, interesting, educational, and many times painful and emotional journey.

I have spent a good part of the year advocating for stroke prevention and health. It’s something I’m very proud of. I’m hoping to expand my efforts next year.

My blogging has been a major help. The love and friendship of the Fellowship of the Dragon has been a major player in me wanting to aim for bigger and better things come next year.

I’d love to know what you’ve accomplished this year with your writings, blogging, WIPs, etc. Please do tell in my comments! Hugs and until next month…keep writing and believing in yourself!