Monthly Archives: July 2014

Depression Hurts – And Gets Me Anxious Too…

Hey there my beloved blogger friends. I’m going to be honest here; I’m having a totally crappy day, and have been for the past few. Remember when I mentioned going to my neurologist (Dr. H) a couple of weeks ago?

Depression Hurts

Depression Hurts

In addition to telling her about my seizure, I also told her that the depression medication (Paxil) that her and my neuropsychologist, Dr. D put me on was not cutting it. Clearly knowing that I was going back to square one with the driving wish because of said seizure incident worsened it ten-fold.

After discussing the options, we decided that Dr. H would increase my dose to 30mg a day, since I’ve been on the lowest dose (20mg) since dropping the Zoloft. I was to finish the scrip that I had, breaking the pills until I had the equivalent of 30mg, and then call her office for refills if the increase helped. It did. Considering that I had a lot of things on my plate the last couple of weeks, I handled it fairly well.

A couple of days before I ran out (last Thursday), I called Dr. H’s office and advised her assistant that I was doing fine with the 30mg Paxil and was ready for a refill. Since I’m staying in CT for a little while, I asked them to call the scrip in to the local CVS here.

I gave the girl all the information and she told me Dr. H would take care of it. My friend dropped off a refill of my muscle relaxer Baclofen two days later (Saturday) and requested the pick up of my Paxil as well. The pharmacy had no idea what he was talking about.

He came back from the pharmacy with only the Baclofen and told me that Dr, H never called in the scrip. Her office was closed and I was going to have to wait until Monday to call her office. I was furious, although I should have been more angry at myself than anyone else because I didn’t follow up that Thursday like I should have. I suppose I’d gotten too comfortable with Dr. H because she is normally great and has it all together, so I rarely had to worry. I have to stop doing that.

My last available dose was Sunday; I didn’t fall asleep until almost 4:30am Monday because I had a lot of pain during the night. I woke up a little after noon. I had my mandatory cup of coffee and called the office, leaving a voicemail with my dilemma. I got caught up in making other appointments and taking care of other issues before I realized it was after six o’clock and I had received no call back and the office closed at four. Shame on me again. Damn if I didn’t start getting cranky now.

I don’t know if it’s because the Paxil was leaving my system or because of my lapse in memory and focus, but here went another day lost when I could’ve had my necessary meds. My friends were telling me I was becoming distant, not wanting to talk much. I figured two days wouldn’t be enough time for me to start reacting the way I was, but friends and family are better judges than I am I guess.

I finally reached Dr. H’s assistant Tuesday afternoon after having to call the office twice. She apologized profusely and promised that Dr. H was going to call in the scrip ASAP and I could call the pharmacy in a half hour to confirm that they received it. I knew Dr. H was going to make me start over since it had been three days now without depression meds. Start with 15mg a day for four days and then take my 30mg. I told her that’s what I would do anyway.

One day I want to stop having to do this...

One day I want to stop having to do this…

I realized this third day I was really becoming distant, moody, apathetic, and increasingly anxious. My appetite was practically nil. I need to become more aware of subtle changes in my moods and in the way I handle life’s daily ‘hits’. I don’t want to be on medication forever. As with my seizure meds, at some point, I want to wean off depression meds so I won’t need them anymore.

I didn’t mean to go off on a rant, but if you suffer from depression as I do, try helping yourself. If it takes the help of close family and friends to make you more aware of behavioral changes, listen. They only have your best interests at heart; sometimes even the strongest survivors need intervention.

I’m lucky enough to even have a blogger friend or two that know when something is not right by the pieces I post, how long I go without blogging, and topics I blog about. When all is said and done, I really am a very lucky lady. Thank you to those who follow me and to those who visit and like. You are truly appreciated. Have a great evening everyone.

 

 

Medical Marijuana

I signed the petition as well. Let’s get this taken care of!

mycerebellarstrokerecovery

Please read this and sign this.

Groundbreaking marijuana study canceled

Have at it, and let the University of Arizona know they need to support full legalization of marijuana.
Why it should be legalized so survivors can benefit;
13 reasons to use it post-stroke.

The University of Arizona fired Dr. Suzanne Sisley rather than let her study how medical marijuana can help veterans like me. Help me get her job back.

dean –
Doctor Suzanne Sisley is an amazing woman — she’s the only doctor in the country who has federal permission to conduct research on how medical marijuana can help veterans. Her study was supposed to be housed at the University of Arizona, but rather than let her conduct it, the university fired her with no explanation whatsoever. As an Iraq veteran and an Arizona alum, I’m fighting to help Doc Sisley get her job back…

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Celebrate the Small Things-July 18, 2014

Hey bloggers!  I know, it’s Saturday, the 19th, but I know you forgive me…At least I hope so. 🙂 I’m here to ‘Celebrate the Small Things’ brought to us by Viklit at Scribblings of an Aspiring Author.

Celebrate the Small ThingsThis blog hop is super easy – just post a celebration, however small or big, in your blog. It doesn’t have to be related to writing. It can be anything happening in your life.

Sign up by clicking on the image to your left, and hop around and celebrate with others.

After posting the things you have to celebrate, please don’t forget to visit and thank Viklit’s awesome and amazing co-hosts for the wonderful job they do:

Diana Wilder
LG Keltner @ Writing Off the Edge
Katie @ TheCyborg Mom
CaffeMaggieato @ mscoffeehouse

Considering the eventful week I had two weeks ago, this past one was pretty quiet.

  • Through the efforts of myself and other volunteers and advocates of You’re the Cure, House Bill 1420 was signed into Law in the State of Pennsylvania by Governor Corbett. Read about it here.
  • I’m still with friends in CT for now; still trying to handle some unfinished business (will fill everyone in when I’m finally at liberty!)
  • Sophie finally made it to the groomers! Oy!
  • I’m still here and I still have a few faithful and loyal friends.

What have you celebrated this week?

Pulse Oximetry Testing for Babies-PASSED IN PA!

I’m so thankful for having joined You’re the Cure a few months back.  ur-cureMy efforts and the efforts of all other volunteer advocates have finally paid off!

Because of us, PA legislators voted YES to The Newborn Child Pulse Oximetry Screening Act, House Bill 1420, and Governor Corbett signed the Bill into law! This means that very soon, all babies born in the State of Pennsylvania will get a pulse ox test to screen out for any congenital heart defects before leaving the hospital. This should have been a given; I’m so glad it’s being mandated.

I’ve already sent my thank you notes to my Representative, Senator and to Governor Corbett. It’s a small win that can make a huge difference in someone’s life.

If you’re interested in doing your part for advocacy without ever having to leave your home, click on the image above and be part of the cure!

That’s it for me today. Have a great night all.

Coming Clean About My Stroke-Part5

Here’s Part 5 from the Coming Clean Series…

lilicasplace

cropped-nasa5-cygnusloopsupernova1.jpg

After the entire fall incident, things began to fall into place. I had a routine to follow, which was important for me then. I had Physical Therapy (PT) and Occupational Therapy (OT) four times a week, Speech Therapy (ST) three times a week and Recreational Therapy (RT) twice a week. I did exceptionally well in PT. By my third day, I was able to stand between the parallel bars and walk half way across and back. My left foot dragged a bit, but at least I could get her to move. I kept forgetting about my left arm and she kept hanging back. My PT would tap me and remind me to ‘bring her along’.  My right arm would dutifully come around and drag my left arm forward to bring her up to speed.

My speech also improved, although it was still my most frustrating therapy. The inability to find…

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Celebrate the Small Things-July 13, 2014 (Whoops)

Hey bloggers!  It’s Sunday, July 13, 2014 and I’m late for the weekly meme ‘Celebrate the Small Things’ brought to us by Viklit at Scribblings of an Aspiring Author. I had half the post set, not realizing that so much was going to happen during the week. After ten months seizure free, I suffered a seizure in Connecticut on the 5th. It was a partial and although I knew what was going on around me, I couldn’t respond to the chaos and panic surrounding me. EMS and Paramedics arrived and recommended that I go to the ER for evaluation since my heart rate was close to 150. I did, although I didn’t allow them to admit me because I advised the doctor that I had my neuro appointment in three days time and would discuss everything with her then. In short, I wound up going back to Pennsylvania for a few days and didn’t make it back in time to realize that I had pre-set the publishing date and time for this post. That’s why you only got half a post. I apologize. My bad.

Celebrate the Small ThingsThis blog hop is super easy – just post a celebration, however small or big, in your blog. It doesn’t have to be related to writing. It can be anything happening in your life.

Sign up by clicking on the image to your left, and hop around and celebrate with others.

After posting the things you have to celebrate, please don’t forget to visit and thank Viklit’s awesome and amazing co-hosts for the wonderful job they do:

Diana Wilder
LG Keltner @ Writing Off the Edge
Katie @ TheCyborg Mom
CaffeMaggieato @ mscoffeehouse

Even though I had a rough week medically, which I will outline in another post, let me tell you what I had to celebrate this past week.

  • My Compai Jose took me to The Bronx yesterday to take our friend Leon to see his family, but also had a surprise for me too. He took me to my Comai Julie’s house, where my daughter Mandy, my niece Juliette, and my godson Gabriel were waiting to surprise me. Oh Happy Day!!! Talk about a thrill.
  • We enjoyed White Castle murder burgers which I haven’t had in YEARS!
  • Julie surprised me by making me her famous DELICIOUS Coquito (with alcohol), that I enjoyed, in moderation of course. 🙂
  • My niece Juliette did my hair and makeup so I could feel like a million bucks…which I did. 😀
  • Although I’m back to square one with my driving practice, my neurologist said all my scans came back great. She believes my seizure was probably provoked by the fact that I was in a dark room with my computer on and the fams was watching a movie (flickering lights). I should’ve known better; this was my fault. Live and learn. Planning on never having another seizure again.

What have you celebrated this week?

Celebrate the Small Things-July 4, 2014

Hey bloggers!  It’s Friday, July 4, 2014 – so HAPPY INDEPENDENCE DAY!! It’s also time for the weekly meme ‘Celebrate the Small Things’ brought to us by Viklit at Scribblings of an Aspiring Author.

Celebrate the Small ThingsThis blog hop is super easy – just post a celebration, however small or big, in your blog. It doesn’t have to be related to writing. It can be anything happening in your life in general.

Sign up by clicking on the image to your left, and hop around and celebrate with others.

After posting the things you have to celebrate, please don’t forget to visit and thank Viklit’s awesome and amazing co-hosts for the wonderful job they do:

Diana Wilder
LG Keltner @ Writing Off the Edge
Katie @ TheCyborg Mom
CaffeMaggieato @ mscoffeehouse

I’m still in Connecticut  because we were going to visit our other friend in The Bronx, but then the severe storm warnings came and that went out the window. According to weather reports, tomorrow is going to be a wash out, but the weekend is going to be nice. News reports state that the fireworks will happen this weekend and our trip to The Bronx might happen Sunday. We’ll have to see.

My anxiety has improved a lot and my depression is a little better, but I might need to up the dosage of my meds. I’ll discuss this with my neuro-psychologist, Dr. D, when I get back to PA. Dr. D knows and understands what I’ve been going through, so he’ll talk to my neurologist. It’s about time I take his advice.

I’ve gone out more than I’ve been able to for a while; even with the heat, humidity and sucky weather, it felt good to be outdoors.

What have you celebrated this week? How is your Fourth of July looking like this year?