Category Archives: Stroke

As the category name implies, any post directly related to stroke, whether hemorrhagic or ischemic, both of which I’ve suffered.

CLINICAL TRIAL FOR STROKE SURVIVORS

Good morning, everyone and Happy Monday!

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There is a new clinical trial available for stroke survivors at risk for heart problems. If you’re interested in applying, follow the link below for more information.

 

http://antidote.me/premium/patients-high-cholesterol/s/861/

I applied today, and should hear back in a few days. It doesn’t hurt to check eligibility.

Have a great week!

 

WORLD STROKE DAY

Today is World Stroke Day, so I thought it would be appropriate to post information that would be helpful to those who aren’t aware of some of the statistics regarding strokes. In addition to posting an infographic, I’m adding a FAST music video that’s about a minute and a half long, and explains what to do in case the signs of #stroke are present.

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Click on the Infographic for more info!

Here is the video:

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Finally, Take the World Stroke Day Pledge to End Stroke HERE. You can help raise awareness by sharing FAST videos, infographics, tweeting about prevention, and making a difference.

Until next post … HUGS!

 

Do You Know?

My friend and fellow stroke survivor Megan, is a recovery ROCK STAR!

Do not tell her what she can or cannot accomplish, because she will prove you WRONG! Everything the doctors told her she couldn’t do, she’s doing.

I’m lucky to have her fighting alongside me because, yes, I know what it feels like. Xoxoxoxo

My Aphasia Story

Do you know about the hell that I’ve been through?

Do you know what it feels like to be diagnosed with severe, expressive aphasia, verbal apraxia, auditory processing issues, and inability to walk?

Do you know what it feels like to not be able to talk, understand anything, or walk?

Do you know what it feels like to have to relearn your alphabet?

Do you know what it feels like to wonder about your future?

Do you know what it feels like to worry about your financial situation in the hospital?

Would we have to sell our house? Would we be bankrupt?

Do you know what it’s like to have your family worry about you?

Do you know what it’s like to see your mom cry about you?

Do you know what it’s like to build your balance and stamina in physical therapy?

Do you know what it feels like…

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STROKE AWARENESS MONTH

Hey blogger friends. Most of you are aware that my disability stems from a hemorrhagic stroke I suffered back in November, 2011 secondary to a ruptured brain aneurysm. I believe I also mentioned that during brain surgery to repair the damage, I also suffered an ischemic stroke.

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Click to find out more about Stroke Month

I wanted to remind you all that May is National Stroke Awareness Month. A lot of people are under the assumption that strokes mostly happen to the elderly. That couldn’t be further from the truth!

Only 46 at the time I had mine, I’ve lost people close to me even younger. Strokes can happen to anyone, at any age – even in utero. Educate yourselves.

 

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Click here for easier to view infographic

I was lucky; I got to live. I won’t lie. It’s been no joy ride, that’s for sure. If you can lower your risk factors for stroke, do it.

Don’t go through what I’m going through, and so many others like myself are going through if you can help it.

Granted, sometimes it happens to the healthiest of people with no rhyme nor reason, and that makes this especially disturbing.

There is a lot of information out there for individuals on helping lower stroke and heart disease risk. Once you become one of ‘us’, a survivor, then there’s not so much. That’s why many of us come together and help each other figure out ways to help ourselves.

That being said, I hope you all have a great day.

 

HMO Hitmen: The Dehumanization of Human Services

I re-blogged this post a few hours ago from one of my favorite sites, takingthemaskoff . This gentleman works in the mental health field and is familiar with the consequences of addictions – first hand – and from both ends of the spectrum.

Being a chronic pain sufferer myself, I was on the Fentanyl patch for over two and a half years after coming out of stroke rehab. I was always afraid of addiction, so I was careful about changing my patch; in fact, I would change it LATER than I was supposed to thinking it would help. Then I noticed I would start getting irritable and moody around the third day. At first I thought it was just my depression kicking in again, but then I realized that my body was craving more of the Fentanyl.

I wasn’t having it, so I stopped – cold turkey over the Thanksgiving holiday. Being an EMT before my bleed, I knew what to expect, so I monitored myself and knew who to call if I couldn’t handle it. It was rough going to say the least. But I got through it, and when I went to my rehab doctor a few weeks later, I told him what I’d done. I expressed my desire to stop seeing my pain management doctor and find alternative methods of pain management. Although he wasn’t fond of how I chose to get off the patch, he understood why.

He then prescribed me a low dose of a patch called Butrans. It’s changed weekly, but unfortunately very expensive…even with insurance. The cost for me skyrocketed from December to January because of the new year and changes with my pharmacy policy. Whereas 4 patches of Butrans (a month supply) runs me $100, a month supply of Fentanyl (10 patches) cost me only $5.00!!

This is why I can so closely relate to this post. It shows how we are not considered living, breathing, and suffering individuals by these big corporations — we are just dollar signs. Now I know why it’s just easier to stay on prescription narcotics – they’re cheap and probably the only thing that many can afford. I’m doing everything in my power to find other alternative forms of pain management including meditation and increased exercise. I’m also going to see if seeing a chiropractor for my back and neck problems would help.

I value takingthemaskoff‘s opinions, his dedication, the time he puts into research, his care, compassion, and empathy for others. This post is a must read. Feel free to help spread the word, and I would encourage anyone with pain management, mental health, or addiction issues to visit and follow his blog.

World Stroke Day – October 29, 2014

Good morning bloggers. Today is Wednesday, October 29 and it is also World Stroke Day. It’s a day to bring attention and awareness to the devastating effects that strokes have on the people they strike. Many are misinformed about who is susceptible to having a stroke. Young people are especially notorious for saying, “Oh, it can’t happen to me; I’m too young.” I’ve got news for you, it can happen to anyone at any age, even newborns and toddlers.

As an Advocate and Activist for You’re the Cure, I do my best to bring attention to the needs of stroke survivors, their caregivers, and families, particularly in Pennsylvania, where I currently reside. Although I am currently uncleared to drive, that will NOT always be the case. World-Stroke For now, I do most of my advocacy work from home. I contact my state lawmakers about proposals of importance like increased funding for therapies for those of us with Medicare. I know I’ve published the F.A.S.T. infographic in previous posts, but I’m going to include it here again. It’s good as a guideline, particularly if the patient is suffering from an ischemic stroke at the time.

I had a sub-arachnoid hemorrhage secondary to a ruptured aneurysm, also known as a hemorrhagic stroke. During my craniotomy, I suffered an ischemic stroke as well, which is a common side effect of that surgery. In a later post, I will explain in further detail the differences between ischemic and hemorrhagic strokes.

For now, please share this post, tweet it,  and pin this infographic to your Pinterest if you have one, so we can reach as many people as possible. Thank you!

 

 

 

 

 

Insecure Writers Support Group – INSECURITIES

Hey all. It’s Wednesday, September 3, 2014, the first Wednesday of the month. We know what that means, right? Time for the Insecure Writers Support Group – #IWSG.

Click on the Image to Join

Click on the Image to Join

Ninja Captain Alex J. Cavanaugh founded this amazing and wonderful group.

The purpose of this group is for writers of any kind to share their doubts and fears, trials and tribulations without fear of being mocked or feeling foolish. It’s also a place where writers who have “been there” can offer wisdom and guidance.

Whenever anyone finishes a draft, edits their work, finds the perfect critique group, publishes their work, or has any other good news to share, this is the place to do it too!

The awesome co-hosts for the September 3 posting of the IWSG are Laura at My Baffling Brain, Mark Koopmans, Shah Wharton, and Sheena-Kay Graham. 
And it’s our three year anniversary of posting!

Make sure you pay them a visit and thank them for all their hard work!

Anyway, I’m posting about my general insecurities this month. On my other blog lilicasplace, my IWSG post is about rejection which sort of goes hand in hand with insecurities. I use my writing as an outlet for me; it’s a way to vent, to release my anger and emotions, and to tell my stories.

I also use it as therapy for recovery. You read right. Typing forces me to work on my fine motor skills, just as I did when I was in Occupational Therapy. It also forces me to focus and concentrate, like I did during Speech Therapy. I’ve gotten better, but I’m still sloooow!! I started this blog in May and expected to be a lot further along with it than I am, here in September. That makes me feel very insecure.

I’ve gotten loads of information at the ready, some posts nearly done on my computer, and lists of resources I just need to double check. My biggest hurdle so far has been figuring out how to work my WordPress pages and doodads. Aye! Yes, I know… I still haven’t figured out half of them from my other blog yet either!

So if anyone can help a poor woman out, I’d be forever grateful!

What are your insecurities? What’s made you bonkers lately? Inquiring minds wanna know.