Tag Archives: Syringomyelia


Hello bloggers. It is the first Wednesday of the month and we know what that means, right? Time for the Insecure Writers Support Group – #IWSG.

NinjaInsecure Writers Support Group Badge Captain Alex J. Cavanaugh , my hero and one of my mentors, founded this amazing and wonderful group.

The group’s purpose is to allow writers to share their doubts and fears, trials and tribulations without fear of being mocked or feeling foolish. It’s also a place where writers who have “been there” can offer wisdom and guidance.

Whenever anyone finishes a draft, edits their work, finds the perfect critique group, publishes their work, or has any other good news to share, this is the place to do it too!

The awesome co-hosts for the August 2 posting of the IWSG are Christine Rains, Dolarah @ Book Lover, Ellen @ The Cynical Sailor, Yvonne Ventresca, and LG Keltner!

Oh boy. Where do I begin? I can’t believe it’s been two months since I posted ANYTHING on this blog. I know I’ve been bad, but now I’m starting to break records. And not in a good way!

I’ll start off with some of the good things going on. It’s always better that way, don’tcha think?

I’ve been reunited with my aunt Mickey and cousin Michelle after sixteen years. It was truly a blessing. I hadn’t seen them since my mother’s funeral in 2001. They picked me up last weekend to spend the week with them in Massachusetts. The ride was brutal but worth it. Sadly, my favorite uncle Joe passed away in 2015, so I missed the opportunity to see him and tell him again how much I love him. Shell’s kids are amazing young men now. One is in a graduate program for neuroscience (look at that!), and the other is in college as well.

The weather wasn’t cooperative, so I had a few bad days while I was there. The fact that my cousin made two Hungarian dishes for me while I was there certainly lifted my spirits. 🙂 I’ll be posting some pictures soon.

I was sad to leave but had to get back to Sophie.

Today I went for my followup cervical MRI, with and without contrast, to see if the Syringomyelia has gotten worse or stayed the same. Fingers crossed! I don’t want any more on my plate. My knee has been giving me a ton of problems over the past few months and I’m almost afraid to have it looked at again.

August 2 Question: What are your pet peeves when reading/writing/editing? You can check out the answer at my other blog site lilicasplace.

What’s new and exciting in your neck of the writing woods?






Good morning, all. I kept the promise to myself on Friday that my post for Celebrate the Small Things would be all positive. I did that. Now, it’s time for me to post the not so great news. It would be an understatement if I said I wasn’t freaking out just a little bit but I’m doing my best.

When I saw my neurologist Dr. G on Friday, he went over my MRIs with me. The brain MRI was as expected. No new aneurysms or anything like that. Yay, for that. I wasn’t so lucky with the cervical spine MRI.


Photo from the Mayo Foundation

It seems that I’m one of the few that suffers from syringomyelia. It’s a disorder where cysts (syrinx) forms within the spinal cord. There are two types:

  1. In most cases, it’s related to an abnormality in the brain called Chiari I malformation. This causes the lower part of the cerebellum to protrude from its normal position in the back of the head into the cervical or neck portion of the spinal canal.
  2. The second form occurs as a complication of trauma (like my car accident in 2011), meningitis, hemorrhage, tumor, or arachnoiditis. In these cases, the cysts (syrinx) develops in a segment of the spinal cord damaged by one of these conditions.

According to the National Institute of Neurological Disorders and Stroke (NINDS), approximately 40,000 people in the US are affected. Couldn’t I have just won the lottery instead? Just sayin’…

Many of the symptoms are similar to the ones I currently have from the bleed, but it could explain why I’ve had a couple of falls lately. Dr. G wants another MRI done in six months to see if it’s grown or expanded. The usual treatment is surgery if the cysts increase or expand, but I’m trying to remain optimistic that I won’t have to go that far. I’ll be monitored by Dr. G and have a follow-up cervical spine MRI in six months to check.

Oh, and I’m back to having to use my cane indefinitely. Blah. Thank goodness he’s got me going to physical therapy soon.

If you’d like more information on this disorder, you can go to the NINDS site.

Like I said, I’m going to try remaining optimistic that the syrinx won’t grow or expand and routine follow-ups will be all that’s required. I love you guys and would appreciate any positive thoughts and prayers you can send my way.

Have a great week. Xoxoxo