Tag Archives: Physical Therapy

#CTST – KEEPIN’ IT MOVIN’

Hey, everyone! It’s time for another posting of Celebrate the Small Things brought to us by LEXA CAINPost anything in life that you’re celebrating, no matter how small or big, on your blog.

Sign up by clicking on the image, hop around and celebrate with others.

Make Celebrate the Small Thingssure your blog post has a link to the sign-up as well, so other bloggers will be able to sign-up and hop around too. 

This is such a simple and easy blog hop, and it also happens to be one of my favorites.  After posting the things you have to celebrate, please don’t forget to visit and thank Lexa and her awesome and amazing co-hosts for the wonderful job they do:

 

LG Keltner @ Writing Off the Edge   and Tonja Drecker @ Kidbits

 I just checked my last CTST post from late February and what a difference a few weeks make. The weather went from Spring-like to Winter in the span of a week. We got pounded with two feet of snow and the weather was down to about 10 degrees.

My knee has been screaming in pain for the past couple of weeks and my back pain and left-sided neuropathic pain haven’t fared much better. The muscle relaxers haven’t done squat. I missed posting my weekly quote since the end of February, so I’m annoyed at myself for that.

However, I do have things to celebrate this week:

I went with Vivi and the fams to see Logan last weekend. Excellent movie, although it was sad for me since I’m a newly converted Marvelite. 🙂

My initial Physical Therapy eval for 2017 went well last week. I have my first official session next week.

Today marks the end of my juice cleanse slash detox, so I can finally have some real food! Nums.

Vivi’s fam is going to see Beauty and the Beast on Sunday. Her daughter Emi badly wants to see it. Fingers crossed that I’ll be feeling well enough to join them. I’ve always loved that story.  🙂

Even though I struggle with a lot of bad days, I’m blessedly STILL ON THE RIGHT SIDE OF THE GRASS!! That’s why I continue keepin’ it movin’! Boo Yaa and Amen!!

What have you celebrated this week?

 

 

 

 

ANOTHER BLOW — SYRINGOMYELIA

Good morning, all. I kept the promise to myself on Friday that my post for Celebrate the Small Things would be all positive. I did that. Now, it’s time for me to post the not so great news. It would be an understatement if I said I wasn’t freaking out just a little bit but I’m doing my best.

When I saw my neurologist Dr. G on Friday, he went over my MRIs with me. The brain MRI was as expected. No new aneurysms or anything like that. Yay, for that. I wasn’t so lucky with the cervical spine MRI.

mcdc7_syringoyelia_cyst

Photo from the Mayo Foundation

It seems that I’m one of the few that suffers from syringomyelia. It’s a disorder where cysts (syrinx) forms within the spinal cord. There are two types:

  1. In most cases, it’s related to an abnormality in the brain called Chiari I malformation. This causes the lower part of the cerebellum to protrude from its normal position in the back of the head into the cervical or neck portion of the spinal canal.
  2. The second form occurs as a complication of trauma (like my car accident in 2011), meningitis, hemorrhage, tumor, or arachnoiditis. In these cases, the cysts (syrinx) develops in a segment of the spinal cord damaged by one of these conditions.

According to the National Institute of Neurological Disorders and Stroke (NINDS), approximately 40,000 people in the US are affected. Couldn’t I have just won the lottery instead? Just sayin’…

Many of the symptoms are similar to the ones I currently have from the bleed, but it could explain why I’ve had a couple of falls lately. Dr. G wants another MRI done in six months to see if it’s grown or expanded. The usual treatment is surgery if the cysts increase or expand, but I’m trying to remain optimistic that I won’t have to go that far. I’ll be monitored by Dr. G and have a follow-up cervical spine MRI in six months to check.

Oh, and I’m back to having to use my cane indefinitely. Blah. Thank goodness he’s got me going to physical therapy soon.

If you’d like more information on this disorder, you can go to the NINDS site.

Like I said, I’m going to try remaining optimistic that the syrinx won’t grow or expand and routine follow-ups will be all that’s required. I love you guys and would appreciate any positive thoughts and prayers you can send my way.

Have a great week. Xoxoxo

 

Celebrate the Small Things – SPEECH THERAPY

 

Hey everyone! It’s Friday again and time for another posting of Celebrate the Small Things brought to us by LEXA CAINPost anything in life that you’re celebrating, no matter how small or big, on your blog.

Sign up by clicking on the image, hop around and celebrate with others.

Make Celebrate the Small Thingssure your blog post has a link to the sign-up as well, so other bloggers will be able to sign-up and hop around too. 

This is such a simple and easy blog-hop, and it also happens to be one of my favorites.  After posting the things you have to celebrate, please don’t forget to visit and thank Lexa and her awesome and amazing co-hosts for the wonderful job they do:

 

 

LG Keltner @ Writing Off the Edge
Katie @ TheCyborg Mom

This has been a great week for me. Most of my followers know the past few weeks have been rough. I’d been waiting for news regarding Speech Therapy and Medicare. My Rehabilitation doctor deemed the Speech Therapy medically necessary, so Medicare will extend my treatment.

For those who aren’t aware, Speech and Physical Therapies are COMBINED per Medicare regulations. Since I’ve had zero Speech this year, I’m eligible. I had my first evaluation on APRIL 22 with a facility because their specialty is Speech only. After I waited six weeks for that evaluation, I find out that I’m on a standby patient only, meaning I can only get in if someone cancels an appointment. They called me one time and by the time I called back, the slot was filled. My doc wasn’t happy when I went to see him on Monday, JUNE 1.

So here’s what I’m celebrating:

  1. My Rehabilitation doctor referred me to the original outpatient rehab organization I previously went to. It’s a different office, but still closer to my house than the original place he sent me.
  2. He referred me on Monday and I already had my initial evaluation TODAY! Even better? I have the same Speech Therapist I had when I first came out of inpatient rehab. She even remembers me. ** Blushing **
  3. I did a little bit of spring cleaning around the house this past week (mostly paper shredding), but what a difference it made.
  4. Going to see Melissa Etheridge live in concert on the 13th in Mount Pocono. So stoked!

Best of all, I’m still ON THE RIGHT SIDE OF THE GRASS and blessed with some very special people in my life.

What have you celebrated this week?

 

 

 

Celebrate the Small Things – April 3, 2015

Hey everyone! It’s Friday again and time for another posting of Celebrate the Small Things brought to us by LEXA CAINPost anything in life that you’re celebrating, no matter how small or big, on your blog.

Sign up by clicking on the image, hop around and celebrate with others.

Make Celebrate the Small Thingssure your blog post has a link to the sign-up as well, so other bloggers will be able to sign-up and hop around too. 

This is such a simple and easy blog-hop, and it also happens to be one of my favorites.  After posting the things you have to celebrate, please don’t forget to visit and thank Lexa and her awesome and amazing co-hosts for the wonderful job they do:

LG Keltner @ Writing Off the Edge

Katie @ TheCyborg Mom

This week has been CRAZY busy for me. 

My alter ego over at lilicasplace is doing the A-Z Challenge this month and I’ve been swamped trying to get posts, research and information together in a timely fashion.

My daughter Mandy is here spending Easter weekend with me and I’m so STOKED about that. We have a lot of catching up to do. I’ve missed my ‘baby’.

I completed my Physical Therapy for the year, but am doing the Wellness program at my physical therapy center. It’s available to anyone who’s ever been a patient there and comes at a huge discount. Love it.

Best of all, I’m still here and blessed with some very special people in my life.

What have you celebrated this week?

 

 

 

Celebrate the Small Things – MARCH 19, 2015

Hey everyone! It’s Friday again and time for another posting of Celebrate the Small Things brought to us by LEXA CAINPost anything in life that you’re celebrating, no matter how small or big, on your blog.

Sign up by clicking on the image, hop around and celebrate with others. It’s been almost a month since I’ve published a #CTST post and that has everything to do with my being under the weather recently. Sorry about that!

 

Make Celebrate the Small Thingssure your blog post has a link to the sign-up as well, so other bloggers will be able to sign-up and hop around too. 

This is such a simple and easy blog-hop, and it also happens to be one of my favorites.  After posting the things you have to celebrate, please don’t forget to visit and thank Lexa and her awesome and amazing co-hosts for the wonderful job they do:

 

 

LG Keltner @ Writing Off the Edge
Katie @ TheCyborg Mom

I’ve done extremely well in Physical Therapy. My range of motion and strength is very good. Unfortunately, I only have one approved visit left for the year per my Medicare which is next week. In a way it’ll work out for me because they offer wellness programs to patients who have been there before at a great discount. If I sign up for a 3-month program, I can go up to 3x a week, use all the equipment, and it’ll come out to less than $3.00 a visit. Works for me! If you live in the Poconos, PA area and need physical therapy, you should check out Marshall Creek Physical Therapy. They’re a great group of people. 

I found out about a week or so ago that they made a mix up with my appointment. The girl I spoke to thought I had an evaluation done already, which I hadn’t. One of the STs called me and informed me that there was a waiting list for evals, so now I’m scheduled for April 22. It’s okay though, they’ll call if they have any cancels prior. I’m just happy to be getting it done.

Both my doctor appointments went really well today, so I’m happy about that.

Best of all, I’m still here and blessed with some very special people in my life.

What have you celebrated this week?

 

 

 

 

 

 

Redefining Disability Challenge-BASELINE and CHALLENGES

 

Hello blogger friends and welcome. I’m posting for the redfng-disblty2Redefining Disability Challenge started by Rose B. Fischer. If you click on the image to the left, you can see exactly what it’s all about and feel free to join. Answer as many of the 52 questions as you like, or the ones that pertain to you. There is no time limit. Answer them in one post, one a day, a week, or whatever fits your needs.

I’m going to spread the questions out over the remainder of the year since a lot of the questions pertain to me already. For today’s post I’m just going to answer question(s) 14 and 15.

14.  Describe your baseline, or an average day.  It’s difficult to describe an average day because they vary so often depending on pain levels, whether or not I have physical therapy, etc. For simplicity sake, my average pain level is about five/ten which is not bad considering I’m no longer on narcotic pain meds. I think the physical therapy, prayers, meditation, and my other meds (muscle relaxers and neuropathic pain meds) have helped also. The warmer weather is helping too.

I’m on top of my meds and take them twice daily as ordered. I feed Sophie three times daily. I go to physical therapy twice a week and am pretty wiped out by the time I’m done. I usually have a few doctor appointments each month that I have to make. I’ve gotten to the point where I can make quick and simple meals for myself as long as I remain in the kitchen.

Cleaning is a hassle because I can only do a little at a time before I need a break. I do bits and pieces otherwise it would take me days. I spend some of my time with my online support group and blogger friends. They’ve kept me going through some of my roughest times. I’m hoping to meet more of them very soon.

15.  What are the biggest challenges that you face in regard to disability?  Wow, I have a few. I’m sure I’ve mentioned some of them in previous posts. The biggest challenge in my eyes is my inability to drive. It’s extremely frustrating for me. Luckily I haven’t had any seizures since last summer so I’m hopeful that my neurologist will finally clear me to drive again, so I can practice. It’ll be four years in September since I’ve been behind the wheel of a car. I’m due.

Another challenge I face is getting people to take me seriously and not talk down to me like I’m slow or stupid. I tend to get overwhelmed in stressful situations, but I try letting people know in advance when I call that I sometimes have a speech impairment when I’m upset. I stutter and sometimes I cry. This is especially true when I’m calling about something IMPORTANT. I’ll save the story for an upcoming question that will explain it perfectly.

That’s about all I have for today all. Have a great day!

 

 

I KNOW YOU MISSED ME…

Hey everyone. I’m so sorry I haven’t posted in a while. I haven’t been well for the past few weeks: lethargy, excessive sleeping, diahrrea and not eating; I even bought myself an ER visit for dehydration. Sigh. The past few days the closest I’ve come to feeling on the ‘Okay’ side for close to three weeks.

I was pretty depressed and disappointed in myself for a while because I was on such a roll as far as getting so many positive things done. depression-1348941951aDCI’m not going to beat myself up over it though. I know it’s not going to do me any good anyway. 🙂

I’m almost done with my Medicare approved physical therapy for the year so I’m going to have to think about other options for keeping my body from regressing. My PT place, Marshall Creek Physical Therapy in PA offers wellness programs at a discount, so I might look into doing that once I’m done.

I have my Speech Evaluation April 22; there’s a waiting list, so unless something opens up before then — I wait.

Just wanted you all to know that I’m okay and missed you all while I was sick.   😀

Until next post, hugs to all!!