Tag Archives: Pain

IWSG – A LITTLE OF THIS AND A LITTLE OF THAT…

Hello bloggers. It is the first Wednesday of the month and we know what that means, right? Time for the Insecure Writers Support Group – #IWSG.

NinjaInsecure Writers Support Group Badge Captain Alex J. Cavanaugh , my hero and one of my mentors, founded this amazing and wonderful group.

The group’s purpose is to allow writers to share their doubts and fears, trials and tribulations without fear of being mocked or feeling foolish. It’s also a place where writers who have “been there” can offer wisdom and guidance.

Whenever anyone finishes a draft, edits their work, finds the perfect critique group, publishes their work, or has any other good news to share, this is the place to do it too!

The awesome co-hosts for the August 2 posting of the IWSG are Christine Rains, Dolarah @ Book Lover, Ellen @ The Cynical Sailor, Yvonne Ventresca, and LG Keltner!

Oh boy. Where do I begin? I can’t believe it’s been two months since I posted ANYTHING on this blog. I know I’ve been bad, but now I’m starting to break records. And not in a good way!

I’ll start off with some of the good things going on. It’s always better that way, don’tcha think?

I’ve been reunited with my aunt Mickey and cousin Michelle after sixteen years. It was truly a blessing. I hadn’t seen them since my mother’s funeral in 2001. They picked me up last weekend to spend the week with them in Massachusetts. The ride was brutal but worth it. Sadly, my favorite uncle Joe passed away in 2015, so I missed the opportunity to see him and tell him again how much I love him. Shell’s kids are amazing young men now. One is in a graduate program for neuroscience (look at that!), and the other is in college as well.

The weather wasn’t cooperative, so I had a few bad days while I was there. The fact that my cousin made two Hungarian dishes for me while I was there certainly lifted my spirits. 🙂 I’ll be posting some pictures soon.

I was sad to leave but had to get back to Sophie.

Today I went for my followup cervical MRI, with and without contrast, to see if the Syringomyelia has gotten worse or stayed the same. Fingers crossed! I don’t want any more on my plate. My knee has been giving me a ton of problems over the past few months and I’m almost afraid to have it looked at again.

August 2 Question: What are your pet peeves when reading/writing/editing? You can check out the answer at my other blog site lilicasplace.

What’s new and exciting in your neck of the writing woods?

 

 

 

 

#CTST – KEEPIN’ IT MOVIN’

Hey, everyone! It’s time for another posting of Celebrate the Small Things brought to us by LEXA CAINPost anything in life that you’re celebrating, no matter how small or big, on your blog.

Sign up by clicking on the image, hop around and celebrate with others.

Make Celebrate the Small Thingssure your blog post has a link to the sign-up as well, so other bloggers will be able to sign-up and hop around too. 

This is such a simple and easy blog hop, and it also happens to be one of my favorites.  After posting the things you have to celebrate, please don’t forget to visit and thank Lexa and her awesome and amazing co-hosts for the wonderful job they do:

 

LG Keltner @ Writing Off the Edge   and Tonja Drecker @ Kidbits

 I just checked my last CTST post from late February and what a difference a few weeks make. The weather went from Spring-like to Winter in the span of a week. We got pounded with two feet of snow and the weather was down to about 10 degrees.

My knee has been screaming in pain for the past couple of weeks and my back pain and left-sided neuropathic pain haven’t fared much better. The muscle relaxers haven’t done squat. I missed posting my weekly quote since the end of February, so I’m annoyed at myself for that.

However, I do have things to celebrate this week:

I went with Vivi and the fams to see Logan last weekend. Excellent movie, although it was sad for me since I’m a newly converted Marvelite. 🙂

My initial Physical Therapy eval for 2017 went well last week. I have my first official session next week.

Today marks the end of my juice cleanse slash detox, so I can finally have some real food! Nums.

Vivi’s fam is going to see Beauty and the Beast on Sunday. Her daughter Emi badly wants to see it. Fingers crossed that I’ll be feeling well enough to join them. I’ve always loved that story.  🙂

Even though I struggle with a lot of bad days, I’m blessedly STILL ON THE RIGHT SIDE OF THE GRASS!! That’s why I continue keepin’ it movin’! Boo Yaa and Amen!!

What have you celebrated this week?

 

 

 

 

Celebrate the Small Things – Feb. 20, 2015

Hey everyone! It’s Friday again and time for another posting of Celebrate the Small Things brought to us by LEXA CAINPost anything in life that you’re celebrating, no matter how small or big, on your blog.

Sign up by clicking on the image, hop around and celebrate with others.

 

Make Celebrate the Small Thingssure your blog post has a link to the sign-up as well, so other bloggers will be able to sign-up and hop around too. 

This is such a simple and easy blog-hop, and it also happens to be one of my favorites.  After posting the things you have to celebrate, please don’t forget to visit and thank Lexa and her awesome and amazing co-hosts for the wonderful job they do:

 

 

LG Keltner @ Writing Off the Edge
Katie @ TheCyborg Mom

This week was busy and eventful. I have a few things to celebrate, actually. 😀

My physical therapy has been going so well that the distance has been lengthened from a half mile to a mile for my stationary bike and the weight has been increased for my leg presses on the body solid from one to two pounds.

I’m continuing to maintain the goals I’ve set for myself since the beginning of the year. That’s a biggie considering we’re almost going into March. Still working on the Blogging 101… Aye! LOL.

My rehab doctor appointment went really well and he discontinued my Butrans prescription and put me on a low dose prescription of Hydrocodone prn, which is good because I’ll only need to take them when the pain is really bad.

He also referred me to Speech Therapy again because we’ve noticed that I’ve been having word finding difficulties again, as well as some other issues. It’s good in the sense that I need it, but it’s bad in the sense that it’s going to be more co-pays that are going to be eating away at my already tight budget. I’m not complaining, though. Somehow, God always manages to help me find a way.

Best of all, I’m still here and blessed with some very special people in my life.

What have you celebrated this week?

 

 

 

Celebrate the Small Things – February 6, 2015

Hey everyone! It’s Friday again and time for another posting of Celebrate the Small Things brought to us by LEXA CAINPost anything in life that you’re celebrating, no matter how small or big, on your blog.

Sign up by clicking on the image, hop around and celebrate with others. Make Celebrate the Small Thingssure your blog post has a link to the sign-up as well, so other bloggers will be able to sign-up and hop around too.  This is such a simple and easy blog-hop, and it also happens to be one of my favorites.  After posting the things you have to celebrate, please don’t forget to visit and thank Lexa’s awesome and amazing co-hosts for the wonderful job they do:

LG Keltner @ Writing Off the Edge
Katie @ TheCyborg Mom

This week I’m celebrating

  • the fact I joined Blogging 101 so I can get a better handle on how to work WordPress

  • I’m maintaining the goals I set myself since the beginning of the year

  • Meditation has been helping me deal with stress and pain a little

  • Most importantly, I’m still here, blessed with very special people in my life.

What have you celebrated this week?

 

 

 

Redefining Disability Challenge-Post 6

 

Hello blogger friends and welcome. Here is another post for the redfng-disblty2Redefining Disability Challenge started by Rose B. Fischer. If you click on the image to the left, you can see exactly what it’s all about and feel free to join. Answer as many of the 52 questions as you like, or the ones that pertain to you. There is no time limit. Answer them in one post, one a day, a week, or whatever fits your needs.

I’m going to spread the questions out over the remainder of the year since a lot of the questions pertain to me already. For today’s post I’m going to answer question(s) 10.

  1. Does disability affect you in other ways? If so, how? I know I’ve mentioned most of the ways the brain hemorrhage and subsequent stroke affect me in some of my previous posts. Of course they affect me in ways big and small. Let me give you a few examples, some big (for me at least), and some small.

A couple of months ago I had an appointment with my neurologist and this was before I met the friend and neighbor who helps me now. As you probably know, I still don’t drive yet, so I called ahead for a taxi. Since I live in the sticks, it sometimes takes anywhere from 40 minutes to 2 hours for a cab to be available. I got lucky that day; the cab came early and I arrived over an hour before my appointment . . .

It’s raining, but I don’t feel like sitting in the waiting room for an hour and change. Across the street is the hospital and catty-corner to that by the intersection is a gas station with a convenience store. I forget what’s on the other corner. Anyway, I decide to hit the store for a cup of coffee and a buttered roll. I walk to the corner and cross the street when the light changes green. I have to cross again to get to the convenience store, but the light won’t change in my favor; at least I don’t think it does. It has the delayed green for left turn signal… I grow impatient after about 10 minutes of standing in the rain and run (gimp) across the two-way street as soon as I can. Not exactly the smartest thing to do, but at least a turning driver is kind enough to wave me ahead.

I head in to the store to the coffee station; I make a cup, and grab a buttered roll from a display. I pay. I step outside and it’s still raining, but I look around and realize I’m completely alone.

Photo courtesy of http://morguefile.com

Come on brain, work!

It’s only been a few days since the only person I really knew in PA, my ex, hauled it back to NJ and I’m here fending for myself. I’m okay with that, but the reality of that freedom finally hits me. I waited a long time for this. It’s overwhelming. I smile, but then I frown. Something doesn’t click.

I look around again and nothing seems familiar; confusion sets in. I don’t know where I am right now. I step off to the side, away from the door. I put my bag on the window ledge with shaky hands. I close my eyes and try to breathe, and think. The last thing I want is to have a panic attack in a strange place. In my mind I know I’m not crazy and something tells me I SHOULD know where I am. BREATHE, Eva. I’m leaning against the building now, trying to slow my racing heart.

After about two minutes, I’m calm enough to open my eyes. The rain is lighter; I look up and see the sign for the gas station. I look across the street. It’s a hospital, my hospital. I breathe a sigh of relief. I got this. I have an appointment today with Dr. H, my neurologist. I know exactly where I am. I pick up my bag, hold my head up, and make my way back to the doctor’s office. Though these occurrences are few and far between, they happen; they scare the crap out of me. These are a couple of the big things.

The first month was extremely difficult for me knowing that the only people I had in PA were my doctors and 911. God blessed me when he put a couple of new friends in my life. I’ve been able to come out of my shell more and my mind is clearer.

Sometimes the small things get to me sometimes too, but not as much. It would be nice to be able to get on a step stool again to change my curtains or reach a shelf without having to worry about doing a face plant to the floor. Or cleaning my shower without worrying about muscle spasms, dizziness, pain, or the inability to bend. I’d also love to hop in my car and just drive. Anywhere. (Oh, wait… That goes under BIG things.)

There’s a lot more I can include, but I’m not going to make this an overwhelming post. I just wanted to give you an idea of some of the things I deal with.

Thanks for taking the time to read, and if anyone has any questions or needs an ear, leave a comment or drop me an email. Until next post, have a great day.

 

 

Celebrate the Small Things – Dec. 12, 2014

Hello blogger friends. It’s Friday,  December 12, 2014 and time for the Celebrate the Small Things meme brought to us by Viklit at Scribblings of an Aspiring AuthorThis is one of the easiest blog-hops around. Post anything in life that you’re celebrating, no matter how small or big, on your blog.

Sign up by clicking on the image, Celebrate the Small Thingsand hop around and celebrate with others. Make sure your blog post has a link to the sign-up as well, so other bloggers will be able to sign-up and hop around tooAfter posting the things you have to celebrate, please don’t forget to visit and thank Viklit’s awesome and amazing co-hosts for the wonderful job they do:

 

Diana Wilder
LG Keltner @ Writing Off the Edge
Katie @ TheCyborg Mom
CaffeMaggieato @ mscoffeehouse

This week I’m celebrating a few things:

♦  My amazing neighbor and friend Tamera, who has been a Godsend to me. She helps me with errands, appointments and chores that I have difficulty doing by myself, like heavy laundry.

♦  My pain levels this week have been a little bit better, averaging between 4-6 since I took myself off my pain patch. Last week I was close to an 8 at my worst. I’m compensating by increasing the amount of Baclofen I take daily to two and over the counter Tylenol.

♦  My two doctor appointments this week went really well and some of my meds were adjusted, and we’re working to manage my pain right now without the Fentanyl. My one doctor suggested that I consider going down to the lowest dose possible for now until we find something else that works. I told her I’d think about it.

♦  Best of all, I’m still here!!  ..

 

What have you celebrated this week?

 

 

 

Redefining Disability Challenge-Post 1

Hello blogger friends and welcome. This my first post for the redfng-disblty2Redefining Disability Challenge started by Rose B. Fischer. If you click on the image to the left, you can see exactly what it’s all about and feel free to join. Answer as many of the 52 questions as you like, or the ones that pertain to you. There is no time limit. Answer them in one post, one a day, a week, or whatever fits your needs.

I’m going to spread the questions out over the remainder of the year since a lot of the questions pertain to me already. For today’s post I’m just going to answer the first question since it basically covers everything.

1.  What is your experience with disability? — Do you have disabilities? Do you have loved ones who live with disabilities?

I suffered a sub-arachnoid hemorrhage (hemorrhagic stroke) in November, 2011 and a subsequent ischemic stroke during brain surgery. During my month in Lehigh Valley’s Neurosurgical ICU, blood test results came back positive for TTP, or Thrombotic thrombocytopenic purpura, which is a blood disorder causing small clots to form in little blood vessels around the body. It was idiopathic in nature, presenting after my hemorrhage, and thankfully resolved after six months of plasmaphoresis treatment through a central line in my chest.

Prior to my bleed I had two incidents just months before where I was injured. In August 2011, I was injured at work, rupturing my right ACL requiring surgery and in September 2011, a drunk driver thought it was OK to drive over twice the legal limit and slam into the back of the vehicle I was driving. I fractured my L2, L3, and L4. I shattered the driver’s side window with my head. The CT scan at the ER that night came out clean, but to determine any growing bleeds or aneurysms, they’re basically useless.

I am now on Social Security Disability until I can be well enough to work again. Since EMS was out of the question for me, I was promised an office position at City Hall when I got better. ‘Take your time, when you’re ready I’ll have something here for you’, the Mayor said… Now I’m jobless. Gotta love politics, don’t ya? That’s a blog post for another day…

I survive on my SSDI and Medicare A and B. I’ll have to look for secondary insurance because I’ve lost that too, and prescription. I see a neurologist, neuro-psychologist, rehabilitation doctor, pain management doctor, and my primary care physician. I just started seeing a psychiatrist because of the worsening depression over losing the job I struggled to get back. I’m on an anti-depressant and a sleep aid that I use only when I really can’t sleep.

I suffer occasional focal seizures secondary to the hemorrhage; my last seizure was in July, hopefully I can stay seizure free until January so I can get my license back. I suffer chronic pain and left sided neuropathy daily. Some days are more tolerable than others. On my worst days, my left side, particularly the arm and my calf feel like they’re on fire. I’ve managed to remain on a low dose Fentanyl patch for the past two years, and low dose muscle relaxer. The Cymbalta does a pretty good job with the neuropathy, but I’m going to start working on meditation once my cottage is a little more organized.

I’m going to be focusing more on me now and what the future has to offer. The past is the past and I cannot dwell on what has been and who’s done what. These past three years have taught me some valuable lessons about life, people, family, friendships (or lack thereof), generosity, greed, corruption, and true kindness.

Thankfully, to my knowledge, none of my loved ones suffer any disabilities.

I am not going to allow this bump in the road of my life stop me from moving on. I know as I continue to regain my strength, surround myself with a positive network of people, and keep doing the things that will bring me happiness, including going back to work one day – I will be fine.