Hello blogger friends and welcome. Here is another post for the
Redefining Disability Challenge started by Rose B. Fischer. If you click on the image to the left, you can see exactly what it’s all about and feel free to join. Answer as many of the 52 questions as you like, or the ones that pertain to you. There is no time limit. Answer them in one post, one a day, a week, or whatever fits your needs.
I’m going to spread the questions out over the remainder of the year since a lot of the questions pertain to me already. For today’s post I’m going to answer question(s) 23 .
23. What would you like the general public to know about your disabilities, disability in general, or any other relevant subject? Above all else, I want the public to know that I no longer consider myself as having a disability. It sounds too permanent and it’s taken me a long time to get out of that mindset.
When people ask me now, I tell them the truth. I suffer residual effects from a sub-arachnoid hemorrhage / hemorrhagic stroke that occurred almost four years ago, and an ischemic stroke that occurred during brain surgery to repair the above. The occasional seizure activity, my neuropathy, pain, depression, and cognitive deficits, I now call my ‘conditions’.
My doctors say I’m still unable to work at all right now, but I’m going to keep moving ahead. One of my goals is to recover enough cognitively that I will be able to handle meaningful employment on a part-time basis at least, within the next year. Three of my doctors feel it’s a doable goal, one has a let’s wait and see attitude, and I just switched PMDs, so she’s too new to give me her opinion. She can only go by the records she’s received from all my other doctors.
When some people hear the word ‘disability’ or ‘disabled’, they automatically associate it with something negative. My conditions don’t define who I am nor do they define who I want to become.
I should not and do not want to be treated differently because I had a medical incident. Have I been? Of course. I am still a good, loyal, and trustworthy friend. Because of that, I’ve been taken advantage of in the worst ways possible. Never again.
Do I have to work harder than most to accomplish things that most others take for granted? Yes, I do. It’s because of having to work harder that I’ve learned to appreciate the little things so much more now. I’m still me, and that’s a good thing.
Until next time…